Andreas - Rares


— November 10, 2017

From Nameless Frights to Warm Fuzzy Feelings

It was an agitated period with nameless frights, steps backwards and then forward; a bit like a dance. Yes, exactly like a dance…

— September 8, 2016

The Lip Face

Another small step forward

— July 7, 2016

One Small Step in Front of Another

“It doesn’t matter how slow a child learns for as long as we encourage him not to stop.”

— March 26, 2016

Hope that Magic Keeps Happeing

This year started full of hope and with renewed energy.

— January 8, 2016

Children with AHD Syndrome

What is Allan-Herndon-Dudley syndrome and what does it do?

— December 30, 2015

Looking Ahead

This year, 2015, has been a challenging one in more than one way. The definitive diagnostic that Andreas-Rareș received at the…

— November 3, 2015

The Adventure Begins

— September 27, 2015

Full Summer

This summer we have worked hard and we’ve learned lots of new things.

— June 23, 2015

We're Turning! We're Turning!

At the age of 18 months and a half Andreas-Rares makes the first successful attempts to turn with no assistance.

— June 12, 2015

Professional Gene Smuggler Wanted

This message is part of a campaign to raise awareness about AHDS (Allan-Herndon-Dudley Syndrome). The poster explains the main…

— June 4, 2015

Small steps and big hopes

Small steps in the right direction and a whole new world to discover.

— May 15, 2015

Thus a Super Hero was Born

Short intro regarding the purpose of this blog and the choice of name.