Andreas - Rares

Media

Article in the Obiectiv Vocea Brăilei about Andreas-Rares and Rare Disease Day.
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Allan-Herndon-Dudley Syndrome Presentation made by Andreas-Rares grandparents, at National College "Ana Aslan" Brăila, in collaboration with "Trebuie" Organization

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Event Celebrating Rare Disease Day 2017 at Brăila Mall, organized by Andreas-Rares grandparents.
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Article on FreeMinds.gr, Andreas-Rares: ένας μικρός υπέρ-ήρωας and Facebook post

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Supereroiprintrenoi supported our campaign as well.


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Rare Revolution Magazine also supported our Rare Disease Day Campaign "Someone I love This Much Needs a Cure"

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Rare Revolution Magazine shared our little ambassador's message

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Andreas-Rares message for Rare Disease Day 2017 had more than 7,3k views and 174 shares.

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Other posts related to Lucian Mindruta's post
Alianța Națională pentru Boli Rare Romania

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Ringier Foundation

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Lucian Mindruta's post about Andreas-Rares and his sindrome

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Andreas-Rares Story on Supereroiprintrenoi

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Allan-Herndon-Dudley syndrome Presentation as Part of the Anaptixi&Logo Event, February 18th 2017

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The Mighty article "When Kids Ask What's Wrong with my Son Who Has Allan-Herndon-Dudley Syndrome"
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Post on the EURORDIS Facebook pagePost_Eurordis_30Jan2017.jpg

9th Place Diploma at the EURORDIS Photo Contest 2016.Diploma.jpg

And the winning picture is:
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Article on Yoocan
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Article published by TheMighty.com 8 Rare Parenting Lessons I've Learned the Hard Way
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Andreas-Rares and his syndrome, Allan-Herndon-Dudley, were mentioned in the EURORDIS News Feed from July 2016.

 

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Rare Disease Day, 29th of February 2016


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6. Article on My Tiny Superhero Story on www.rarediseaseday.org

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5th Place Diploma at the EURORDIS Photo Contest 2015.

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This is the winning picture!


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EURORDIS Facebook Page

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Article on RareConnect.org
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Professional Gene Smuggler Campaign

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Blog Post Eimai Mana http://www.eimaimama.gr

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